Well Friday turned into a day of running about.
It was blood count day so my lovely daughter and I set off
for London on Thursday evening ahead of a morning appointment at the hospital
for blood count and review.
All fairly uneventful in the beginning. Being able to use a hospital flat is fab – they’re
comfortable and well appointed and free of charge to patients. Without the flat we’d be running up some
hefty hotel bills by now.
We appeared at the day unit bright and early to be told I
was listed for 2:30pm! Things were hastily
rearranged and blood was duly drawn. We
were sent away to wait for results so grabbed coffee & a bacon sarnie in
the hospital cafeteria, checked in with Himself to find him in the middle of
his own comedy of errors. He had one job
to do…… Two of the cats Charlie and
Edward were due to the vet for jabs, I had offered to change the appointment
but Himself did declare himself a man of mature years and judgement and
perfectly capable of getting two cats to the vet. I left instructions – Charlie and Edward to
the vet at 9:30 – that’s Charlie and Edward. (James and Murphy did not need the
vet)
When I spoke to him at the vet I enquired as to who he’d bundled into cat
carriers? “Charlie and Edward” he said
(in that "I know what I'm doing tone" whilst clearly checking) then “oh sh*t, I’ve got James!”. It had apparently taken
some effort to bundle James into the carrier involving chasing behind sofas,
under beds etc. All this time Edward was
watching on, sat right by the carrier as if to say “um it’s me you should be
taking……”
As I go through this process
Himself is going to have to step up to cat responsibilities – it hasn’t started
well.
So, I digress – back to our running around Friday…….
Blood results showed my neutrophils at 0.1. Neutrophils are a type of white blood cells
that fight infection – think of them as a first responder in an emergency
services kind of a way. My level is
extremely low so chance of infection is very high – not so good. My Haematology
co-ordinator (Sara) was in theatre so the nursing staff were doing their best
to get in touch with the Registrar to see if it was safe to send me on my
way. We’d handed the keys to the flat so
these were duly returned to us and just as we were settling back into the flat
I got a call from Sara who said she’d best see me even though I felt quite well
- so back to the hospital……
Swabs were taken & numbers reviewed. My lymphocytes are okay (these are the virus
fighting ones), red cells (in charge of oxygen) and platelets (in charge of
clotting) were okay. (I’m learning quite a lot about blood…)
I was deemed to be
safe to come home, instructed to double the injections of G-CSF (the stuff that
makes stem cells multiply) and as was now “neutropenic” to stay away from
people and be very careful of what I eat.
A neutropenic diet means basically making sure I don’t eat anything that
may have bacteria that could be harmful to a compromised immune system. So it’s no to salad, soft fruit, soft cheese etc. In short anything that can’t be scrubbed with
anti-bac and peeled, or cooked to death is off limits.
There is an upside – no one ever caught e-coli from chocolate –
individually wrapped of course.
This is
going to be very dull – may have to get in touch with inner Nigella and write a
cookbook. (and I'm only on day 2 of this - is it possible there is a life without brie?)
So it’s back to the hospital tomorrow ahead of harvesting up
all the brand new stem cells I’m growing.
I know they’re growing, they grow in the bone marrow so bone pain is to
be expected and has arrived, as instructed right on schedule – just as well my relationship with
codeine is intact.
This will be my space for the remainder of the day.
I need to stay away from people but with views like this,
that’s not such a hardship.
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