Well dear readers I am now up to the fifth night at home in my own bed.
Some fluffy folk were very pleased to see me.
On Sunday my neutrophils were back from their summer hols and had sprung into action - a "normal" count is between 1.5 and 8 and mine had returned at a hefty 6.7.
This news so pleased the Haematology Registrar who also declared that as my other bloods results were looking good. And as long as I didn't run a fever overnight, my incarceration would end the very next day.
"They said she could run a fever, but I said no, no, no" (Forgive me Amy Winehouse!)
All went to plan no fever so a wait for discharge papers, a little wait for drugs from the pharmacy and we were on our way home.
My lovely specialist nurse came to visit & said she was now going to include my pretty much "breezing through" on her continuum of "telling it like it could be" for patients. I know people who have had a really rough and brutal time and I can honestly say I had a day of feeling a bit shabby - the ashen day that had those who love me concerned - but honestly - I've felt worse with the flu. It's her job to tell people it can be really grim and brutal so if folk have that experience they don't panic and think something has gone wrong. But a story from the other end helps people be positive and less freaked out by the whole ordeal - happy to oblige.
How did I "rock it" - sheer luck I think.
So since Monday I've been taking it easy but trying to do a bit more each day to build up my strength - sitting about for almost 3 weeks in a 6 metre by 4 metre room makes one a little wobbly but we're getting there.
I'm back to the hospital on the 18th for bloods to check what should be up is up, and what should be down is down, and will meet with the lovely Dr G the Haematologist (or one of his team).
Until then I have to stay away from crowded places where there could be sick people and be careful of what I eat - remember the whole if you can't cook the bejesus out of it, you can't have it? That's where we are until we have the blood results on the 18th. Anti bac gel and wipes are my constant companions.
Himself and my lovely sister have the biggest jar of cotton wool on hand to wrap around me but today we ventured out. We had lunch on the Quay at Poole in a place where we know the owner who was able to give his chef strict instructions of what do with my pizza - cook it to a point where they probably wouldn't serve it and hold any green pretty leaves they may just be tempted to sprinkle. We sat outside and it was blissful to be in the fresh air (also reducing the chance of sitting close to a sick person).
We then had a wander on Weymouth beach - ice cream is allowed.............
I'll be on antibiotics for the next year and anti viral meds for the next six months to guard against infection as my baby immune system learns what to do - it has forgotten I've had everything and most importantly - doesn't have MS!
Any damage I have already from MS is pretty much here to stay but further action has been kicked into the long grass.
Medical science is amazing - the staff at Hammersmith Hospital are Super Heroes. It goes without saying we couldn't have done it without Baxter, Grant and the unnamed American.
My TripAdvisor ratings are that the service is second to none, the level of amenity very good though could do with a lick of paint. Cleanliness - first class - even an inspector with a little bacteria measuring machine popped in to make sure we were germ free. Oh - and a shelf in the bathroom would be handy for girl stuff.
So again it's so far so good - there is still a risk of infection. I'm taking my temperature twice a day in case a pesky fever returns - though it steadfastly remains normal - note this is not a complaint.
Once I see the team on the 18th and the numbers are right I am guardedly saying - we've rocked it!
(oh - and I still have custody of the stupid money headphones - rest and relaxation are so important to recovery!)
Some fluffy folk were very pleased to see me.
On Sunday my neutrophils were back from their summer hols and had sprung into action - a "normal" count is between 1.5 and 8 and mine had returned at a hefty 6.7.
This news so pleased the Haematology Registrar who also declared that as my other bloods results were looking good. And as long as I didn't run a fever overnight, my incarceration would end the very next day.
"They said she could run a fever, but I said no, no, no" (Forgive me Amy Winehouse!)
All went to plan no fever so a wait for discharge papers, a little wait for drugs from the pharmacy and we were on our way home.
My lovely specialist nurse came to visit & said she was now going to include my pretty much "breezing through" on her continuum of "telling it like it could be" for patients. I know people who have had a really rough and brutal time and I can honestly say I had a day of feeling a bit shabby - the ashen day that had those who love me concerned - but honestly - I've felt worse with the flu. It's her job to tell people it can be really grim and brutal so if folk have that experience they don't panic and think something has gone wrong. But a story from the other end helps people be positive and less freaked out by the whole ordeal - happy to oblige.
How did I "rock it" - sheer luck I think.
So since Monday I've been taking it easy but trying to do a bit more each day to build up my strength - sitting about for almost 3 weeks in a 6 metre by 4 metre room makes one a little wobbly but we're getting there.
I'm back to the hospital on the 18th for bloods to check what should be up is up, and what should be down is down, and will meet with the lovely Dr G the Haematologist (or one of his team).
Until then I have to stay away from crowded places where there could be sick people and be careful of what I eat - remember the whole if you can't cook the bejesus out of it, you can't have it? That's where we are until we have the blood results on the 18th. Anti bac gel and wipes are my constant companions.
Himself and my lovely sister have the biggest jar of cotton wool on hand to wrap around me but today we ventured out. We had lunch on the Quay at Poole in a place where we know the owner who was able to give his chef strict instructions of what do with my pizza - cook it to a point where they probably wouldn't serve it and hold any green pretty leaves they may just be tempted to sprinkle. We sat outside and it was blissful to be in the fresh air (also reducing the chance of sitting close to a sick person).
We then had a wander on Weymouth beach - ice cream is allowed.............
I'll be on antibiotics for the next year and anti viral meds for the next six months to guard against infection as my baby immune system learns what to do - it has forgotten I've had everything and most importantly - doesn't have MS!
Any damage I have already from MS is pretty much here to stay but further action has been kicked into the long grass.
Medical science is amazing - the staff at Hammersmith Hospital are Super Heroes. It goes without saying we couldn't have done it without Baxter, Grant and the unnamed American.
My TripAdvisor ratings are that the service is second to none, the level of amenity very good though could do with a lick of paint. Cleanliness - first class - even an inspector with a little bacteria measuring machine popped in to make sure we were germ free. Oh - and a shelf in the bathroom would be handy for girl stuff.
So again it's so far so good - there is still a risk of infection. I'm taking my temperature twice a day in case a pesky fever returns - though it steadfastly remains normal - note this is not a complaint.
Once I see the team on the 18th and the numbers are right I am guardedly saying - we've rocked it!
(oh - and I still have custody of the stupid money headphones - rest and relaxation are so important to recovery!)
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